Last modified: 05.01.2019
At Rising Voices Wessex (RVW) we believe in the potential of shared experiences to transform lives and improve health by providing support for people affected by cancer through music and song. We do this by encouraging friendships and enabling people to share their experiences. In turn this provides support, aids self-management and improves social interactions with the aim of improving health and well-being.
Because this may involve members sharing sensitive information about their health we also believe in the importance of clear and transparent privacy guidelines. It is important for members to know how we use and share your data and how we can control what happens to information you share with RVW.
1. Sharing and Controlling Information
Who are we?
Rising Voices Wessex is a charity providing support for people affected by cancer through music and song. We do this by encouraging friendships and enabling people to share their experiences. In turn this provides support, aids self-management and improves social interactions with the aim of improving health and well- being.
Rising Voices Wessex is a registered charity in England and Wales charity number 1165053. Its registered address is: 24, Oakenbrow, Sway, Lymington, Hampshire, SO41 6DY. The Choirs meet at The New Church Tuckton Road, Southbourne, BH6 3HT and St Johns Church, Ashley Road, Poole. BH14 0AA
Who can see your personal identifiable information?
None of your personally identifiable information (i.e. email address, postcode, date of birth or telephone number) is ever visible to other users or given to other members or third parties without your explicit consent. All details we receive on your membership form are maintained on an encrypted data base. Only our data manager can see all of these details. Access to your data on our email contact list also restricted to a small number of Trustees and members of the steering group who need to keep you informed of the choirs activities. To see our Data Policy click here.
How can you control your information?
Members can choose at any time to have their personal data removed from our data base if they no longer wish to attend Rising Voices Wessex.
Will you be contacted for research purposes?
In the future we may contact you for research purposes, such as taking part in surveys or clinical trial recruitment. In this case it will always be Rising Voices Wessex that contacts you, not a research partner directly as we never share your email address with third parties.
Who can access information and how?
Rising Voices Wessex can access and export anonymized and aggregated data reports, for example how many members we have. This detail could then be used to apply for funding or grants.
2. Doctors and Healthcare Professionals
Rising Voices Wessex welcomes Healthcare Professionals; however none of your personal data will be made available to them unless you choose to share this information with them. If members consent, this information can also be anonymised and aggregated for research and audit for academic studies.
Institutions and Industry
Health Institutions (e.g. NHS or Department of Health) and Companies (Pharmaceuticals or Medical) may request data to research the experience of members. This may be a survey or an analysis of data or through more structured studies. This can only happen if members give their consent to share information and you can opt out at any time.
3. Clinical Information
Do you store clinical information?
Rising Voices Wessex do not store any clinical details about you, other than that which is disclosed on your membership form.
Is Rising Voices Wessex integrated with hospital systems?
No, our data base is not linked to any other data bases.
4. Privacy and Security
Rising Voices Wessex provides industry standard security.
5. Policy Towards Minors
Children under the age of 16 are prohibited becoming a member of Rising Voices Wessex unless accompanied by a parent/grandparent. In registering as a member you are acknowledging that you are aged 16 or above. We do not knowingly collect personal information from children under 16. If we become aware that a child under 16 has provided us with personal information, we take steps to remove such information and will delete the child’s account.
6. Communications with You
By becoming member or visiting our website, you agree that we may provide you with information about RVW (whether by email or any other medium) that we consider appropriate. You may opt-out of receiving emails from us by emailing firstname.lastname@example.org with the word REMOVE and we will remove your details from our data base.
7. If you need more information
Please contact us with any queries or concerns you have regarding this policy or how we use your personal information at email@example.com or text/telephone: 07500 676083.
If you have a further complaint or are not happy with our response you have the right to escalate this to the Information Commissioners Office (ICO). The ICO can investigate your claim and take action against an individual or company who has misused personal data.